March 12, 2015

Re: Pan Mass Challenge Riders

Pedals for Pediatrics

Medicine Patient Services (MPS) Family Resource Room

 

It is with gratitude that I say thank you to all the Pan Mass Challenge Riders that make funds available to the Pedals for Pediatrics that help so many fantastic endeavors. 

The grant that was awarded to the MPS Family Resource Room is the only funding the room gets, and it makes it possible to fund our Parent Relaxation Activities for our inpatient families here at BCH.  Our parents are here for frequently and for long admissions and they look forward to these services to help alleviate their stress and worries. 

We see an average of 800 parents a year with Chair Massage, Reiki and Restorative Relaxation (seated Yoga) and recently Hand Massage.  If the parents had their wish, we would double our offerings!

I am including some parent comments that they give on our post-service evaluations so that you have a sampling of how much your efforts help, I wish I could share them all with you.

When the parents ask me how we are funded, I always tell them it is through your dedicated efforts that make it all possible.  Thank you will never be enough to say.

 

Parent Comments:

Massage:

“This was so nice, I have never had a massage before and I can’t believe how much better I feel.”

“I can’t remember the last time I felt an adult touch me.  It was wonderful.”

“All of the relaxation has been wonderful to take part in.  The last few days have been overwhelming with my daughters care and this was a much needed break.”

“Please have this available in every unit, everyday, all the time!”

“It (massage) helped me to realize that I need to take time for myself.  If I am stressed, I am not at my best.”

“I have been here for over 40 days and the massage, Relaxation and Reiki have been vital to my coping.”

“What this does for a mother of a sick child is special, deeply touching and extremely therapeutic.  I can’t thank you enough.”

“LONGER!!”

 

Reiki:

“I love this session, it was nice to have a moment away from all the distractions and stress.”

“Maxine is my favorite!  I feel 50 lbs. lighter today! When we get to go home, I am going to find a place to learn this myself.”

“This is very soothing and comforting.  A nice way to unwind, Maxine is wonderful.”

“Thank you!  Really helped me to breathe and find peace and center myself, I feel so much better.”

“I suffer from fibromyalgia and Reiki is an alternative medicine recommended for it.  I can still feel the release of stress after the session.  So beneficial for me, I can’t tell you how great this was here for me.”

“Extremely relaxing.  Thank you for offering this, I practice Reiki and love it, so it was nice to have it while here at the hospital.”

This session was extremely helpful and quite powerful.  I have never had Reiki and it made it easier to function mentally. Loved it.”

 

Restorative Relaxation:

“Bonnie helped me on breathing and I easily achieved stretches. I loved the session.”

“She (Bonnie) is amazing.  These therapies made extended hospitalizations more bearable.  Priceless!”

“Bonnie lets you talk out your frustrations to help you relax.  Love the service offered, I actually look forward to all of them when I know my child has an admission!”

 

Pediatric Resource Program

Pediatric cancer treatment regimens are often long and difficult and many of our families experience financial hardship.  If not addressed, this hardship can create barriers to care, including housing and food insecurity and transportation problems.  The dedicated support provided by P4P has become an essential tool in helping our Pediatric Resource Program to care for our patients and their families.  P4P’s support touches our patients and families every day via the gift cards (gas, grocery, Longwood Medical Area eateries) that we use to provide immediate and direct support.  Our P4P fund also assists families in times of crisis.  Recently, a P4P grant helped a family replace the failed heating system in their trailer home, allowing their 21-month-old daughter to be discharged from her stem cell transplant admission to a safe and warm home. Thank you, P4P, for helping us to help our families.

Joe Chabot, MS, Pediatric Resource Program Manager, Dana-Farber/Boston Children’s Cancer & Blood Disorders Center

 

Parking Program

For many years, Pedals for Pediatrics has been largely supportive of the One Mission Resource Room’s parking program for hematology/oncology families.   The parking program helps ease some of the financial burden that families are faced with during long inpatient stays at Boston Children’s Hospital.  Parking can cost $10.00 a day for families and sometimes even more.  With the funds raised by Pedals for Pediatrics we are able to give over 120 families parking assistance that includes vouchers for up to 20 days. 

A mother of a nine year old cancer patient explained, “I never imagined all the extra expense it would be to have my child here in the hospital.   I honestly never wanted to imagine being here, but with gifts like parking vouchers it really helps our family feel supported, and have hope.  It may just seem like parking, but it really means so much more to me and my family.”

All of our families benefit from this program; we cannot thank Pedals enough for their ongoing support and dedication to keeping this program running and growing for many years now.  

Martha Young, MS, CCLS 
Program Manager Patient and Family Education 
Dana-Farber/Boston Children's Cancer and Blood Disorders Center